Nystagmus Network

#Nystagmus

The Nystagmus Network (NN) have definitely helped both myself and my family since I was first diagnosed with wobbly eyes.  I would highly recommend getting in touch if either you yourself or someone you know has Nystagmus – they’ll be able to guide you in the right direction and provide you with the information you need.

Who are the Nystagmus Network?

Nystagmus Network is the UK’s leading charity dedicated to supporting individuals and their families who are affected by this visual impairment that only effects 1 in 1000 people.

What do Nystagmus Network do?

As well as being the number one go to source for people who are affected by Nystagmus in the UK, the NN also do so much more:

• Fundraise for research

Whether it’s setting up there own fundraising events or promoting sponsorship for individuals, research into Nystagmus tends to be underfunded so the NN want to change that!

• Give advice/practical and emotional support

Let’s face it, Nystagmus isn’t exactly the most renowned eye condition, it can be quite a traumatic experience when your baby’s first diagnosed (I know it was for my parents!!!)

• Spread awareness of Nystagmus

Did you know that June 20th is International Nystagmus Awareness Day? No? Well now you do (I only found this out through the NN). Find out more here…

• Provide educational help

When talking to children, parents and teachers about Nystagmus, the NN have a really handy booklet called Wobbly Eyes to tell them everything they need to know!

Find out more on the NN’s website!

Contact – info@nystagmusnet.org